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Connie Ford’s Story

Cardiomyopathy Survivor, Age 37, Fort Wayne, IN

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Connie's Story

The doctor told me at 30 years old my heart murmur had progressed and needed to be evaluated further. I thought to myself “I’m only 30 it is no big deal!” and I went on with my life. At 34 with a one year old son while I was sitting in the emergency room scared out of my mind, I realized it doesn’t matter how old you are… you are at risk. — Hypertrophic obstructive cardiomyopathy was the diagnosis and an ICD/Pacemaker was the “safety net” put in to hopefully help prevent sudden cardiac death. I did not cause this disease, it was genetically assigned to me. Nothing could have prevented it, but I could have kept it from getting as bad as it did before getting diagnosed. Two years later the obstruction had grown so bad that I was in heart failure and in significant trouble. Open heart surgery removed 9 grams of excess heart wall muscle. When I said goodbye to my son before heading to the hospital for surgery, I was not sure if I would be coming home to he and my husband. Thankfully I did. Thankfully I am here to share my story. If one life can be saved, it is worth it.

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Connie is interested in giving and receiving support from other women with heart disease. Contact her if you'd like to give and receive support.

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