Connie Ford’s Story

Cardiomyopathy Survivor, Age 39, Fort Wayne, IN

Gives and receives support

Connie's Story

The doctor told me at 30 years old my heart murmur had progressed and needed to be evaluated further. I thought to myself “I’m only 30 it is no big deal!” and I went on with my life. At 34 with a one year old son while I was sitting in the emergency room scared out of my mind, I realized it doesn’t matter how old you are… you are at risk. — Hypertrophic obstructive cardiomyopathy was the diagnosis and an ICD/Pacemaker was the “safety net” put in to hopefully help prevent sudden cardiac death. I did not cause this disease, it was genetically assigned to me. Nothing could have prevented it, but I could have kept it from getting as bad as it did before getting diagnosed. Two years later the obstruction had grown so bad that I was in heart failure and in significant trouble. Open heart surgery removed 9 grams of excess heart wall muscle. When I said goodbye to my son before heading to the hospital for surgery, I was not sure if I would be coming home to he and my husband. Thankfully I did. Thankfully I am here to share my story. If one life can be saved, it is worth it.

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Connie is interested in giving and receiving support from other women with heart disease. Contact her if you'd like to give and receive support.


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