Julianne Macias’s Story

Other Survivor, Age 43, Niagara Falls , NY

Gives and receives support

Julianne' Story

My name is Julianne Macias and I am living with one of the rarest forms of heart disease and syndrome’s there is, but the key word in my story is Living. At only 40 years of age 41 later this month I have so far survived Three separate open heart surgeries, 13 angioplasty ‘s, 11 thrombectomies and each year after my heart surgeries Zi have had to have heart stents placed for a total of nine and even have a greenfield filter implanted. At the age of 28 I began having heart disease symptoms and severe joint pain.My doctors told me that even though I suffered from shortness of breath,chest pain with exertion and a severe cough that I was too young for heart problems and that I should just relax more.Two years later I almost suffered a heart attack at work and was rushed to my first emergency open heart.One month later I had severe artery blockages again and was having my second on heart and was diagnosed with. Takayasus Arteritus and Antiphospholipid Syndrome. Not listening to the doctors and following my heart that my symptoms were real saved my life and although I have to be treated and fight these diseases everyday along with diabetes now (prednisone induced) I am Living proof that although difficult you can survive and Live a happy life even with Heart Disease.

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Julianne is interested in giving and receiving support from other women with heart disease. Contact her if you'd like to give and receive support.


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