Research Goes Red Data Challenge
Research Goes Red is a longitudinal and dynamic registry that is dedicated to studying women's cardiovascular health1. To address the identified gaps in women, the American Heart Association (AHA) launched Research Goes Red in collaboration with Verily’s Project Baseline. Established in 2019 as a novel online platform, Research Goes Red provides researchers with access to a range of health survey data and resources that allow for developing new studies focusing on women's cardiovascular disease. We are hosting a data challenge to encourage cross-collaboration among researchers to deepen our understanding of women’s health, such as the impact of social and structural determinants of health and novel risk factors on women’s health.
The Research Goes Red data challenge seeks research ideas to advance the understanding of cardiovascular diseases and women’s health, especially on the following topics:
- Health concerns of women stratified by age, social and structural determinants of health.
- The relationship between health perceptions and experiences with self –reported clinical outcomes, e.g., obesity, diabetes, hypertension, or heart attack/stroke/heart-related disease.
- Women’s reproductive health
We will provide Research Goes Red data and tutorials for how to use this data for each participant entering the challenge in a private and secure workspace on the American Heart Association’s Precision Medicine Platform. The data that will be used for this data challenge is all de-identified and self-reported and will include:
- The participants’
- Blood pressure and hypertension
- Diagnosis with heart-related disease
- Having heart attack/stroke in the last 10 years
- Survey data listing the health issues that participants are most interested in or concerned about.
- Employment status
- Healthcare insurance plan
- Healthcare Experiences and Perceptions survey data – on the quality of their healthcare experiences based on their gender, race/ethnicity including:
- Adequate care in an emergency room
- Seen quickly by a medial professional.
- Healthcare professionals dismiss or downplay symptoms.
- Bystander assistance when experiencing a medical emergency.
- Symptoms being overlooked or misdiagnosed.
- Reproductive Health Survey data
- Provide information on participant (reproductive age)’s health, and knowledge on cardiovascular disease, including:
- Preconception health and prenatal Care
- Post-conception health including postpartum depression
- Sociodemographic information.
We have provided tutorials, survey forms and a data dictionary. For more information about the data, please visit the data snapshot page and the data resource page (PMP portal account required to view, simply register, and login).
Register here(link opens in new window) to participate in the Research Goes Red data challenge.
- If researchers have questions about the feasibility of their study, please contact [email protected]
- Please make sure you respond “Yes” to the question “Are you registering for the Research Goes Red Data Challenge 2023?”.
Once we review your registration, we will email you with a link to execute our standard Non-Disclosure & Data Use Agreement which will allow you to gain access to the Research Goes Red data on the Precision Medicine Platform. Upon execution of the agreement, you will receive instructions for requesting the Research Goes Red dataset and a workspace on the Precision Medicine Platform
- Each challenge participant/team will be provided with a workspace on the AHA’s Precision Medicine Platform at no cost to conduct all analyses. Use of the workspace is mandatory for participation in the challenge.
- Submit your research analysis by the deadline of June 30, 2023 by 5 pm CT.
Who will apply
- We welcome trainees, women, and underrepresented groups to apply.
- Diversity of perspectives and experiences is crucial to our success, so we encourage all to apply.
April 3rd: Registration(link opens in new window) opens.
- The Precision Medicine Platform workspace and Research Goes Red dataset can be requested by the data challenge participant for analysis after execution of the NDA-DUA.
June 30, 2023, by 5 pm CT: Data Challenge Submissions due.
Optional AHA Scientific Sessions 2023 Abstract Submission
- June 8, 2023 : AHA Scientific Sessions 2023 abstract deadline – June 1, 2023, by 5 pm CT: Deadline to submit an abstract for review to [email protected] prior to AHA Scientific Sessions 2023 abstract submission deadline (for participants that want to submit their abstract to AHA Scientific Sessions 2023). A statistician should be pre-specified on the author list. Participants will be notified of any feedback and approval.
- Optional AHA Scientific Sessions 2023 Abstract Submission
July 31, 2023: Finalists are selected and notified.
- November 11–13, 2024: Grand prize winner will present their research at AHA Scientific Sessions 2023.
Three prizes will be awarded to the top submissions. Recipients of the grand, second or third place prize will be required to publish a manuscript detailing the winning solutions and will be subject to the Research Goes Red Research Policy (PDF).
- Grand prize: $25,000
- Second place: $15,000
- Third place: $5,000
Submissions will be reviewed by a peer review committee that includes experts and volunteers from the American Heart Association. Reviewers will evaluate the novel information learned from the analyses that address the focus of the research question. Specifically, the committee will assess the:
- Findings or results of the data analyses
- Data and data analyses (methods that support the findings)
- Novel information learned
- Overall impact of the findings and analyses on the question’s focus
The Precision Medicine Platform provides an easy-to-use, web-based user interface that allows participants to access a secure, cloud-based environment. It contains a variety of standard software and packages such as Python and R. The platform workspace leverages Jupyter Notebooks and RStudio to allow users to create notebooks to document and display results.
Each participant must submit a notebook from their individual workspace in the Precision Medicine Platform that includes the following:
- Full name of corresponding applicant and team members
- Institution (if applicable)
- Email address of corresponding applicant
- Phone number of corresponding applicant
- A 250-word description of the findings and how they can be applied.
- Description of data analysis and datasets used for establishing, testing, and validating models.
- Figures or tables (if applicable)
Download detailed instructions (PDF) for how to submit your notebook.
Please note that all abstract and manuscript must be reviewed and approved by RGR Science Advisory Group before publication.
Precision Medicine Platform workspaces will remain available to participants if you are working towards publication of a manuscript. If your data challenge submission is not selected as a finalist and you do not want to publish your research, we will decommission your workspace shortly after the conclusion of the data challenge.
Please email [email protected] with any questions regarding the data challenge.
1. Gilchrist SC, Hall JL, Khandelwal A, Hidalgo B, Aggarwal B, Kinzy C, Mallya P, Conners K, Stevens LM, Alger HM, Mehta L, Wexler L, Mega JL, Hernandez A, Hayes SN, et al. Research Goes Red: Early Experience With a Participant-Centric Registry. Circulation Research. 2022;130(3):343–351.