Hypertrophic Cardiomyopathy Personal Stories

Facing hypertrophic cardiomyopathy can be a daunting task. You have every reason to be hopeful and positive about your outlook. You’re in good company: hear from other patients sharing their experience with HCM.

Hypertrophic cardiomyopathy survivor Alison Conklin. (Photo courtesy of Alison Conklin)

As a teen, she saw her mom die from the same heart problem she inherited
Decades later, her son saw her collapse. But thanks to what was new technology at the time, a device implanted in her chest saved her. Read Alison's story.

Sara Amaya-Revelo (left) and her brother, Michael. (Photo courtesy of Sara Amaya-Revelo)

After brother's diagnosis, New Jersey woman unlocks her own
Ongoing, troubling symptoms are explained away – and then put on a back burner – before she learns she has hypertrophic cardiomyopathy. Read Sara's story.

Kathryn Redmond and her partner, Ethan. (Photo courtesy of Kathryn Redmond)

Patient won't let diagnosis of hypertrophic cardiomyopathy define her
After years of visits to cardiologists, Kathryn Redmond 'finally had a name' for her health troubles. Read Kathryn's story.

Kristen Criss

Twelve years after sister's sudden death, a clue from her mom's death certificate
When Kristen Criss met with the medical examiner after an undiagnosed heart condition killed her sister, he had an urgent message: Get your heart checked. It took 12 years before she learned she had hypertrophic cardiomyopathy. Read Kristen's story.

Después de años de síntomas, Shawn Lewis finalmente recibió diagnósticos de insuficiencia cardíaca y miocardiopatía hipertrófica.

Chef's persistent symptoms at last lead to hypertrophic cardiomyopathy diagnosis
After years of symptoms, Shawn Lewis finally received diagnoses of heart failure and hypertrophic cardiomyopathy, which led to a temporary heart pump and eventually a heart transplant. Read Shawn's story.

Adam Elliott y sus médicos pensaban que sufría de ansiedad. Sin embargo, las palpitaciones cardíacas, el dolor torácico y los latidos irregulares eran señales de cardiomiopatía hipertrófica que se ignoraron.

Patient hopes to solve 'puzzle' of his heart condition
Adam Elliott — and his doctors — thought he suffered from anxiety. But his heart palpitations, chest pain and irregular heartbeats were missed signals of hypertrophic cardiomyopathy. After finally getting a proper diagnosis, Elliott now focuses on his health and being with his two boys. Read Adam's story.

Gwen Mayes is a survivor of hypertrophic cardiomyopathy.

Survivor powers through 'hell,' thrives on the other side
Gwen Mayes always had hypertrophic cardiomyopathy. But she didn't always know it. And once she did, she reluctantly shared how the symptoms terrorized her. Years later, she helps others talk about their health. Read Gwen's story.

Sharon Bond flexionando sus músculos

Walking the talk
After undergoing surgery to treat hypertrophic cardiomyopathy (HCM), Sharon Bond founded a non-profit organization dedicated to raising awareness about heart disease. Read Sharon's story.

Apoyo que lo eleva

Nuestra comunidad en línea de sobrevivientes y cuidadores está aquí para apoyarlo en su avance sin importar cuáles sean los obstáculos. Hemos estado allí y no lo dejaremos solo.

escalera humana para escalar una pared


La Hypertrophic Cardiomyopathy Association participa en la iniciativa de Miocardiopatía hipertrófica de la American Heart Association para mejorar el conocimiento y la atención de la enfermedad.

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